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A friend
who answered the call
WEST BAY 08/10/2005
By Daniel Barbarisi
Journal Staff Writer
"I was at a ... Christmas
party, and somebody had a dog from NEADS.
And I was like, tell me everything."
- John DeFazio
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DeFazio,
who has been unable to walk since a fall in
December, and Shapleigh play in his yard.
Shapleigh will be the center of attention
at a fundraiser on Sept. 1 to raise money
for a specialized van to provide DeFazio,
who has multiple sclerosis, with a means of
transportation.
PHOTO BY ANDREW DICKERMAN
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CRANSTON -- Home has become a prison for John DeFazio.
As multiple sclerosis has ravaged his body and sapped
his strength, walking has become difficult, and
now impossible. He leaves the house once a week.
The worst day was Dec. 7. The 55-year-old former
restauranteur was walking across his kitchen when
he lost his balance, falling forward. His shoulder
slammed against the door frame, and he toppled backwards.
DeFazio found himself lying prone on the ground,
his shoulder in extreme pain -- he had fractured
and dislocated it -- and unable to get up, or move
at all to get help. He was alone in the house, save
for his dog, Shapleigh.
"Shapleigh. Fetch phone. Fetch phone," he remembers
saying.
The dog raced to the phone, and brought it to DeFazio.
He dialed his wife, Marie, at work. She said she'd
come home right away. Then he called 911.
DeFazio lay on the floor and screamed in pain until
the ambulance arrived. When the paramedics came,
he bit his lip and quieted down. Until the ambulance
ride. Every bump was a moment of agony. He couldn't
hold it in any longer.
"Can I still scream?" he asked one of the paramedics,
"Be my guest. Scream all you want," the man responded.
He screamed all the way to Miriam Hospital in Providence.
When John returned home, his shoulder back in place
but months of rehabilitation ahead, his constant
companion was waiting, wagging her tail.
John and Shapleigh are best friends, with a business
relationship. Shapleigh is no normal dog; she is
a service dog -- an assistant for the day-to-day
things John can no longer do.
On command, Shapleigh carries bags in mouth, turns
lights on and off, fetches videotapes out of the
VCR. She even took off John's socks -- until he
ended that practice because his footwear had too
many tooth holes. They go out into the yard and
play together, Shapleigh playfully fetching a stick,
but then instantly snapping to attention when John
needs her for a task.
"When I go to work, I don't worry about him. [Shapleigh]
proved that I don't have to," said his wife, Marie.
Since his fall in December, John has not been able
to walk. He knows he will probably never walk again.
He is essentially chained to his large, electronic
wheelchair.
"My walking days are over. I know that," he said.
And without being able to walk, he is unable to
leave the house more than once a week.
Shapleigh, he believes, is the key. The dog has
brought back a semblance of normalcy for John --
and hopefully, she is the key to bringing even more
of his old life back. He wants out of the house.
To do that, he needs a specialized van that can
accomodate his wheelchair. And to get that, he needs
money -- $37,000, at least.
The DeFazios are planning a fundraiser for Sept.
1, and using the dog as the centerpiece: the Driving
Miss Shapleigh fundraiser dinner, a comedy show,
auction, and concert that they hope will bring in
enough money to get John close to his goal of greater
freedom.
John was diagnosed with MS nine years ago. At first,
he just thought his balance was off. He was an active
man, who owned a breakfast-and-lunch restaurant
in West Warwick, called Crossroads. But he kept
falling. Soon, he realized something was wrong.
But he was proud, and didn't want to acknowledge
that his body was degrading -- only a few years
before, he had survived a bout with thyroid cancer.
He could overcome this, he thought. But his coordination
worsened.
"I'd be staggering, and moms would think I was drunk
and grab their kids," John said.
Eventually, John relented and walked with a cane.
Then, later, with a crutch. But soon, those weren't
enough to keep him functioning. The breakthrough
was Shapleigh.
Shapleigh, a part-labrador, part-greyhound named
for a town in Maine, is the product of a specialized
dog-training school in Princton, Mass., called National
Education for Assistance Dog Services-- NEADS. It
trains dogs for service with the blind and disabled.
"I was at a Multiple Sclerosis Christmas party,
and somebody had a dog from NEADS. And I was like,
tell me everything. Everything," John said.
Her training -- which cost $12,000, which the DeFazios
covered through fundraising -- took more than six
months, with John participating in two weeks of
it, as the two got to know each other. He received
the dog in October of 2003.
Shapleigh is like a machine -- seemingly, you can
turn her on and off. She has a special apron that
proclaims, "Please don't pet, I'm working." When
the apron is on, she's on the clock. Her ears slide
back, and she is prepared to respond to any command.
"These dogs make a difference. Even before the fall,
she had improved the quality of John's life immeasurably,"
Marie said.
In public, Shapleigh is an ambassador. Children
see her, and want to pet her. Adults see her, and
realize that John is not a stumbling drunk -- he
is a man with a disability.
Now, he hopes that his best friend will help him
one more time -- that the story of her devotion
will be enough to bring people to his fundraiser.
The fundraiser will be held at Lombardi's 1025 Club
in Johnston on Thursday, ea/addSept. 1. Tickets
cost $35, and can be purchased by calling Marie
at 943-6505, or by e-mailing at mdefazio@juno.com.
Also, donations can be made to The Driving Miss
Shapleigh Fund, c/o Citizens Bank, 1090 Charles
St., North Providence, RI 02904.
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